When Kai was born, he needed to be resuscitated. An MRI soon revealed extensive brain bleeds on both sides of his brain. Doctors warned his family to prepare for lifelong challenges—cerebral palsy, developmental delays, and more.
But Kai defied the odds.
Today, the six-year-old is full of life. He loves swimming, dancing, video games, and has a talent for making people laugh. “He’s met every milestone—just a little late, just long enough to make me worry,” says his mom, Jen.
Kai’s biggest hurdle today is epilepsy. He’s tried five medications, but his seizures remain uncontrolled. Some are mild. Others require emergency care. “It’s like a time bomb,” Jen explains. “You never know when it’s coming.”
Thankfully, the family is never alone. BC Children’s Hospital has been there from day one—and continues to be their lifeline. Neurologist Dr. Connolly and nurse clinicians Cindy and Tracy are always just a phone call away.
“They’re the most accessible care providers we’ve had,” says Jen. “They never rush us. They listen, guide, and help me breathe through the hard moments.”
Earlier this year, Kai stayed at the hospital’s Epilepsy Monitoring Unit for five days. Though he was tethered to a wall of wires, donor-supported comforts like video games, child life specialists, and cozy amenities helped turn a tough experience into something positive.
“They made every effort to make it OK,” says Jen. “They cared for Kai—but they also cared for me.”
“Kai doesn’t let epilepsy define him,” says Jen. “And with the care we receive at BC Children’s, neither do we.”