When Cailey found out at 16 weeks pregnant that her son, Bensyn, might be born with Down syndrome, she cried—not from fear or sadness, but from the weight of the unknown. Still, she and her husband were certain of one thing: “No diagnosis would change how much we loved him.”
At birth, two holes were discovered in his heart (ASD), and he was later diagnosed with pulmonary hypertension, making surgery too risky, for now. Over the past 200 days, he’s been far from his home and his siblings in Fort St. John, while receiving ongoing care at BC Children’s Hospital, including plans for a G-tube surgery and many ups and downs in between.
But through it all, Cailey says, one thing has never wavered: the love that surrounds him.
From nurses who treat him like family to a music therapist who learned his favourite song, the hospital has become their second home. Cailey recalls watching fireworks one night from a hospital window—joined by nurses, patients, and parents. “It was simple, but so beautiful. A reminder that even in the hardest places, love and community can still be found.”
Bensyn loves cuddles, music, and “chatting” with his care team. His family is hopeful for what’s next.
“Our journey hasn’t been easy, but BC Children’s has helped carry us through. We’ll never forget the people who’ve stood beside us.”